I originally started this blog to raise awareness about Complex Regional Pain Syndrome (CRPS). As many know I developed this condition following Total Knee Replacement (TKR) in 2010. It is of interest to note, that the by and of itself, the TKR was successful and the joint works very well. Why I developed this dreadful condition one can only guess but the literature and the doctors advise that the trauma of the surgery can lead to the development of the condition. I have spoken to people through Facebook who have developed CRPS as a result of a fall or a break or a sprain or simply a bump. One amazing young woman, I met when I was in rehabilitation, developed her condition when a chair was pulled from under her by a classmate playing a prank and she landed heavily on the floor.
I have not written about CRPS for quite a while and your feedback on my sharing of childhood memories has been well received and positive. I thought I would share with you a new symptom of CRPS that has developed much to my displeasure.
One of the interesting (?) things about CRPS is that there is no defined course of the condition. It can affect each person differently and the progress of the condition differs from person to person. In my case I have had a significant spread. CRPS spread from my left leg to my left arm and then to the left torso and side of the face. Then, that not being sufficient, it is in my right foot and arm. Some people do not have a spread and some symptoms don’t appear for some. One thing that is common however is the severe unrelenting pain. The pain score is highest on pain scales and is said to be higher than childbirth or amputation. For some people the pain does not retract. In my case I have days were it is bearable and days which are beyond unbearable. On these days of unbearable pain I am either confined to bed or the lounge. I try to make the best of the days when the pain falls to a manageable level.
One of the things I have experienced from the beginning of this journey is the feeing that ants are crawling on and biting my skin. Formication is the medical term for this sensation. It is one specific form of a sensation known as paresthesia.
At the weekend this particular sensation took a turn for the worse. At 2.00am on Sunday as I lay in the warmth of bed listening to the rain with my companion insomnia I had a new and never before experienced sensation. I leapt from the bed, ripping back the covers looking for the rodent that was biting on my leg. Hb awoke and assured me there was no rat in the bed. He thought I had been dreaming and soon went back to sleep. But that was not the case. The ants have gone and I now have the feeling that a small animal is gnawing on my left leg. Now I have never experienced a rat or any other animal gnaw at any part of my anatomy but what is happening now is like I imagine it would be.
I will phone the GP in the morning and let hm know about this. There is probably not much he will be able to do to diminish the sensation but I like to share the challenge.